Today D. Kai Wilson-Viola visits Tweedle Dee and Tweedle Dave to talk candidly about what it’s like to be bipolar and share her exciting IndieGoGo project.
What it’s Like to be Bipolar… – D. Kai Wilson-Viola
I’m going to do something heart-breaking for many of you to read. I’m going to tell you the unvarnished truth about what it’s like to be a bipolar.
To do so, I need to introduce myself.
I’m Kai. That’s not my real name, not really, but it’s the name everyone knows me by, and as soon as I can work out how, it WILL be my real name.
I’m an author, and the mother of two kids – trying desperately to get my books published and just *out there* so I can let go and write some more. I’m the daughter, grand daughter and great granddaughter of a line of very….impetuous women. We’re all Scottish, which explains a lot.
I live with a wonderful man, who mostly accepts my quirks, but has done his level best to teach me how to live with myself, for which I’m eternally grateful.
I am bipolar one. That means that I’m suicidal when depressed and when manic. I’m also considered psychotic because I see things.
So, what’s it like to be bipolar? Honestly? Even though I’ve known what I am for close to 12 years, the only thing I can do is describe it as being ‘me’. I don’t know the difference – I’ve never been ‘normal’ by anyone’s standards. Even on medication, I run on a 60 day complete ‘sine wave’ cycle. That is, I start at normal, drop to depressed, swing back to normal, keep going into manic, then drop again back to ‘normal’ and start again. It really is like a rollercoaster sometimes. Running on a predictable loop, but each day I wake up a little sadder for most of the cycle.
I spend 35 days or so either melancholy, depressed or flat out suicidal. At my worst, I see things, I hear things, and I hurt myself. There’s this woman that starts stalking me and telling me how worthless I am.
And what’s worse? I believe her. My psych tells me that this is a complication of what I am – I have very low self-esteem. So low in fact that you can be an acquaintance, have met me once and tell me something bad, and I’ll believe you, if it’s a criticism of me. I have a slightly better perspective on reviews, but only just.
That woman, whose face I can’t look up into, is with me 10 days of the 60. A sixth of the cycle, I hear and see things. That’s called psychosis, and is bad, and uncommon for bipolars.
I spend around 10 days on the first ‘normal’ streak – given that normal is a setting on the washing machine, the way my nurse talked to me about it is like a beach. Depressed is drowning, normal is up on the sand, but where it’s wet…manic is out in the dunes and tracking some butterfly somewhere.
I spend five days manic. I do not sleep (unless I’m on my meds), I clean and I write. Lucky I’m a writer huh?
The problem is – I talk at a million miles an hour, I’ll agree to do *anything* and I am a bit funny about money. Not completely crazy, but I’m a funny person to be around. I’m happy and vivacious and bouncy, and mad. Totally and utterly, but in a nice way.
I came to terms with being bipolar long ago – actually, most of the time, I try very hard to see the upside in being what I am. I see the world differently.
Which, to be honest, stood me in good stead for Uni for four years. I got to explore the reaches of my psyche, and understand more about the world in a way that actually now works in my favour.
I’m also lucky because though I have low self-esteem, I kinda believe in myself, in that deep, dark core that hides from the rest of the world.
And that’s when I decided that I’d help others. So, I’m running a project called ‘Pictures in the Dark’. I’ll be creating an anthology, and a funding campaign at IndieGoGo . I have hope, even though I go through everything I do, and I want to give others that.
And that’s where y’all come in. I need help to set up a foundation. I’ve got a few days left, and I’d love all of the help and support I can get. Whether you pass the link on, or donate, I am forever grateful.
Her Indiegogo campaign is to support the foundation of a project designed to create a self-sustaining publishing project designed to de-stigmatise mental health. You can help by donating as little as $5 and change someone’s life.








Sep 18, 2012 @ 19:59:16
Kai – thanks for sharing. Go Boldly and conquer new mountains!
Laxmi
Laxmi recently posted..Why I don’t want it all
Sep 19, 2012 @ 13:15:18
Thanks for commenting Laxmi.
It was a great post, wasn't it? :)
Sep 19, 2012 @ 19:25:22
:) Thanks Laxmi. I wanted to give people an idea of what bipolar really is – too often we see stuff in the press that's only accurate for a tiny slice of time, and it's just not helpful.
Kai recently posted..Praise of Motherhood – excerpt
Sep 18, 2012 @ 20:54:26
My mother is and I've lived with her, well, all my life. hehe You'll be happy to know at 68 she's settled down very nicely.
(dofollow)
alchemyofscrawl recently posted..Primal by D.A. Serra Interview
Sep 19, 2012 @ 13:16:50
Thanks for commenting Coral.
I'm glad your mum is doing so well :)
Sep 19, 2012 @ 19:26:43
:) It's good to know you're right. At 25, they told me I'd be gone by now. I proved them wrong ;)
Kai recently posted..Praise of Motherhood – excerpt
Sep 19, 2012 @ 01:25:17
Yes thanks for sharing Kai. One nephew of mine is bi-polar, 2 are autistic and the last has anxiety disorder . All my brothers, sister and I also have anxiety disorders. It's not as intense as bi-polar, but I secretly suffer and no one sees it. When I was young I thought I was crazy as a lot of disorders were not diagnosed yet. I told no one about it till I was almost 30 and finally diagnosed. I applaud your courage to tell your story and then to help others.
Sep 19, 2012 @ 13:22:19
Thanks for commenting Steven.
Thank you for sharing your own experiences and those of your family. We greatly appreciate both Kai's bravery in her post and your own in telling your story.
Sep 19, 2012 @ 19:28:41
:) I think it's a lot more widespread than people realize. It's probably because there's such a stigma, but I always feel like I should let people know – I hate the idea of someone believing they're all alone.
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Kai recently posted..Pictures in the Dark funding project
Guest Post: What it's Like to be Bipolar… – D. Kai Wilson-Viola
Sep 19, 2012 @ 08:38:14
[...] Guest Post: What it's Like to be Bipolar… – D. Kai Wilson-Viola Tweet Share and Enjoy [...]
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Sep 19, 2012 @ 15:39:09
[...] Guest Post: What it’s Like to be Bipolar… – D. Kai Wilson-Viola (tweedling.com) [...]
Sep 19, 2012 @ 19:29:47
Thank you so much for running this :) I was sitting bawling writing it, but I think it was important to say – and important to write.
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Kai recently posted..Praise of Motherhood – excerpt
Sep 20, 2012 @ 12:30:14
Thanks again for the post, Kai. We're proud to have shared it and thank you for your bravery in writing it.
Sep 19, 2012 @ 21:25:37
I'm also Bipolar I, rapid cycling with anxiety and auditory hallucinations at the worst. (Only rarely do I see things) My cycle runs about 20 days, often shorter, very rarely longer. I first became sick when I was 14, and I am 28 now. I have survived three suicide attempts, and I'm finally beginning to manage things with the help of family, friends, and a patiently supportive fiance.
My friends say I'm 'Crazy, but benign crazy', and they're hugely supportive of my writing.
I'm glad to see your post, and I agree with so much of what you said. Thank you for being so open!
Sep 19, 2012 @ 21:59:42
Hi, Kai,
After reading this, I think it's a miracle you manage to get anything done and can't imagine what people who suffer from this disorder go through. Wishing you success with starting the foundation.
Donna and Dave, thanks for helping to spread this info.
J.L. Campbell recently posted..Genre Favourites – Movie, Music & Books
Sep 21, 2012 @ 00:22:54
Thank you so much for your bravery and sharing. Keep daring greatly!
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Sep 30, 2012 @ 21:23:26
[...] 18th September – What it’s like to be bipolar (1) http://tweedling.com/2012/09/guest-post-what-its-like-to-be-bipolar-d-kai-wilson-viola/ [...]
Jan 02, 2013 @ 23:03:40
Having bipolar disorder myself I am well aware of the challenges you have been having to deal with. The biggest challenge for me was the self stigma I inflicted on myself. My bipolar caused me to feel less of a man and I tried to hide my illness from everyone. I have fortunately learned over time to look at my life differently than I once had. Now I look at myself and highlight my strengths post my illness instead of concentrating on the strengths that were lost because of my disorder. Read my story here: What is stigma?
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gerald bouthner recently posted.."Working at Home | With Bipolar"